Archive | March, 2011

Eosiniphillic Esophagitis Clinical Trial…THE END

20 Mar

Button Boy has been on a Clinical Trial for Eosiniphillic Esophagitis since our initial visit to Cincinnati Children’s Hospital in late August/early September of 2010.  The Trial is a double blind trial.  He got a confirmed diagnosis after his EGD and Impedence Probe…and was allowed into the study at that time.  He was given unmarked inhalers of Flovent (or placebo, we didn’t know until the second part of the trial) and asked to take 4 puffs (instead of inhaling them into his lungs, he swallowed the medication so it would coat his esophagus) in the morning and 4 puffs at night.  We desperately hoped that he was actually on the Flovent because after about a month of medication he began having the typical symptoms (for him) of being on a steriod.

We returned to Children’s in Cincinnati in December 2010 for his 3 month EGD.  When he had his EGD in August, one of the biopsies was counted to have over 235 eosiniphil cells (the cut off for the diagnosis of EoE <Eosiniphillic Esophagitis> is 24 eosiniphil cells)….the tech who read his biopsy was amazed!!!  This biopsy taken in December had 0 eosiniphil cells!!!!  ZERO, ZIP, ZILCH, NADA!!!!!  We were amazed and thrilled!!!!  Unfortunately, Button Boy has still been on a retricted diet (no Wheat, Eggs, Nuts, Fish or Cinnamon) but has gone down to 2 puffs in the morning and 2 puffs at night!  YIPEE!

His symptoms have decreased and seem to be, most of the time, non-existant!

We did find out that the first 3 months of the trial he was on the real Flovent.  We also knew that no matter what he was on during the first three months of the trial that the second three months he would definitely be on Flovent.

So, we are getting ready to return for his 3rd EGD as it is related to the trial. We are very hopeful that his biopsies come back at zero again.

Once again we are looking forward to seeing Dr. Shazad Saeed, he has been Button Boy’s doctor since he was 5 months old.  It is always so sweet to see such a familiar face in Cincinnati!!!  Mojo has taken a new picture of Button Boy to give to his doctors…it is one of the highlights of our time with our doctors to share a part of our family with them.

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Emily Dodenhoff Boyette, My Meme

15 Mar

My Great Aunt Meme

My Great Aunt Meme passed away very suddenly this morning around 5am.  To say that she loved the Lord was such an understatement!  For as long as I can remember, she loved reading and studying about God’s Word and in God’s Word.  Her library is pretty amazing for a little old lady!  She and Mojo enjoyed discussing the finer points of God’s Word and theology…there were many times that she would tell Mojo to take this book or that book because she wanted him to read something that she knew would interest him as much as it did her.

To say that Meme loved my family is such an understatement.  My daddy’s parents died while I was still young, and my Aunt Meme took the place of my Big Momma.  She was as much a GrandMother to me as my MeMommy was.

Meme loved my kiddos, too.  Just like they were her very own Great-Grandchildren!  She would always tell Girly Girl that she was “the most beautiful girl in all the world!”  (which we *all* know is true, anyways!)  And Button Boy made her laugh just by being in the room.

Some of my favorite memories of Meme were her stories!  She could spin a tale like no one else!  For her 89th birthday, my cousin’s wife, Mary Margaret, took one of her most beloved stories (The Cat with the Purple Tail) and had it put in book form with some lovely illustrations!  For her birthday, she sat down and read it to all of the “great grandchildren”, their parents and the parent’s parents!  It was such a sweet time, and what a terrific memory for my kids….they are old enough that they will remember such a special moment!

God called His servant home.  I know that it is a sad time…I will miss her tremendously!  But, I am also praising God for Meme’s life…and those many people that she touched and was able to witness to over her 89 years!!

I love you, Meme!

End of the Season…

7 Mar

Both of my kiddos wanted season tickets to Auburn Athletics for Christmas.  They told us that if they couldn’t have *anything* else (we had a very tight Christmas this past year) all they wanted were Gymnastics season tickets (Girly Girl and me) and Saturday SEC Package Basketball (Button Boy and Mojo).  So, what did they get?  Their respective season tickets…and #2 jerseys!  (CAM!) (btw, Mojo got a #2 jersey, also!)

Button Boy and Mojo had a lot of fun at their basketball games.  They got to see Auburn lose to Alabama, Vandy, LSU, and Arkansas, but he got to see them win against Mississippi State in a great comeback!  Button Boy really doesn’t care too much if they win or lose at this point.  He is just happy to be there cheering and eating stadium food!

Girly Girl and I have gotten to see Auburn win against LSU, Kentucky, and Pittsburgh…and lose against Arkansas.  We still have a meet against SEMO on the 11th.  Being season ticket holders, we also got invited to the end of season celebration.  John Roethlisberger, US Gymnastic Olympian 1992, 1996, & 2000, will be speaking.  Girly Girl is very excited about the opportunity to meet a real Gymnastic Olympian!!  I’ll have my camera ready, don’t worry! 

One thing I wanted to mention about the gymnastics team at Auburn…after every meet the Auburn gymnasts have come to the season ticket holder section and told the section thank you for supporting their sport.  I think it is an awesome small thing that makes Auburn Athletics so great!

I don’t know a lot about competitive gymnastics, but am learning…I really do believe that Jeff Graba did a great job this season…and look forward to many more!

I am very sad to see Rachel Innis leave this year.  She has been one of the shining stars over the last two seasons!  Her personality is so much fun, and she always makes time for the girls…all the girls, not just mine!  We love you, Rachel!

(…and the crowd goes wild!)

We are going to miss all the girls during the off-season…and can’t wait to see them next season!!!

Okay, I have a really bad crush….on Aubie!  I absolutely adore his fun personality and think he is absolutely adorable!!!!

A totally crazy crush…yes, HI, I’m addicted to Aubie!

What a cutie!

Now, onto the last autograph session…

We love you, Auburn Gymnasts!  Good luck at Regionals!