Archive | December, 2010

Merry Christmas

24 Dec

The Birth of Jesus Christ

2 In those days a decree went out from Caesar Augustus that all the world should be registered. 2 This was the first registration when Quirinius was governor of Syria. 3 And all went to be registered, each to his own town. 4 And Joseph also went up from Galilee, from the town of Nazareth, to Judea, to the city of David, which is called Bethlehem, because he was of the house and lineage of David, 5 to be registered with Mary, his betrothed, who was with child. 6 And while they were there, the time came for her to give birth. 7 And she gave birth to her firstborn son and wrapped him in swaddling cloths and laid him in a manger, because there was no place for them in the inn.

The Shepherds and the Angels

8 And in the same region there were shepherds out in the field, keeping watch over their flock by night. 9 And an angel of the Lord appeared to them, and the glory of the Lord shone around them, and they were filled with fear. 10 And the angel said to them, “Fear not, for behold, I bring you good news of great joy that will be for all the people. 11 For unto you is born this day in the city of David a Savior, who is Christ the Lord. 12 And this will be a sign for you: you will find a baby wrapped in swaddling cloths and lying in a manger.” 13 And suddenly there was with the angel a multitude of the heavenly host praising God and saying,

14 “Glory to God in the highest, and on earth peace among those with whom he is pleased!” 

15 When the angels went away from them into heaven, the shepherds said to one another, “Let us go over to Bethlehem and see this thing that has happened, which the Lord has made known to us.” 16 And they went with haste and found Mary and Joseph, and the baby lying in a manger. 17 And when they saw it, they made known the saying that had been told them concerning this child. 18 And all who heard it wondered at what the shepherds told them. 19 But Mary treasured up all these things, pondering them in her heart. 20 And the shepherds returned, glorifying and praising God for all they had heard and seen, as it had been told them.

21 And at the end of eight days, when he was circumcised, he was called Jesus, the name given by the angel before he was conceived in the womb.

~~May you all have a blessed Christmas and during the hustle and bustle and gift giving…remember that without the Cross Christmas is just another day.  Jesus was born to die for us.  Plain and simple.  Praise God for the birth!~~

LET IT SNOW!!!

18 Dec

We were just in Cincinnati, OH, for another round of testing for Button Boy at Cincinnati Children’s Hospital.  While we were there they had a snow the likes that we had never experienced!  The white powder was just that…..powder!  It was so powdery that it would not make into snowballs!  They just fell apart!

We loved getting to play in the snow!  We stayed in Covington, KY, and were right on the river across from Cincinnati.  Cincinnati covered in snow was just beautiful!!

We had requested a meeting with Dr. Mark Rothenberg who is the lead researcher on the EoE Flovent Trial that Button Boy has been on the last three months.  Dr. Rothenberg was a wealth of information and we were happy to get to meet him and have him meet Button Boy.  We felt strongly about him putting a face with Button Boy’s file. 

Button Boy’s surgery was on Monday afternoon.  He was apprehensive and worried, as usual.  He had Spike the rhino (he got him before another surgery at Children’s Birmingham), who is Strong and Courageous, to take with him into the operating room, but he decided that since Spike was from CHS-Birminham that he needed a special stuffed friend from Cincinnati Children’s.  We took him down to the gift store and he found Cobbler the kitty and Little the hamster (with a Santa hat) to take with Spike.  He was happy with his new friends!  Once he got his “joy juice” (Versed) he relaxed tremendously.

Dr. Saeed, Dr. Franciosi, Bridget (she is our contact in the clinical trial), and Angie all came to see us.  It was such a blessing to be able to hug Dr. Saeed and tell him how much we miss him!  He has been such a great doctor, and we are thrilled to be able to keep in touch with him.  We also let Dr. Franciosi and Bridget know that they have been “assimilated” into our family….they are taking care of my baby, and therefore are a part of our family!

After finishing the procedure, Dr.Franciosi met us in a conference room to discuss what he saw.  He was very pleased to tell us that Button Boy’s esophagus looked better….much better!  He was very careful to tell us that just because it looks better does not mean that the biopsies would reflect that.

The rest of our stay was pretty uneventful…the kiddos were tired of being cooped up in the hotel, but it was 12 degrees outside, and no one wanted to go out in that!

We spent Tuesday night in Nashville, which is where one of my college roommates lives with her dh and cutie pie son!  We met them at Rutiers, one of Jimmy Buffet’s top 10 Cheeseburgers in Paradise!  It was such a sweet time to get to visit with CJ and AW (another friend from college)…I miss them so much!

I have been blessed beyond belief with a terrific and supportive family (I have been having anxiety attacks when it is time to do any traveling) and friends that are caring and loving through thick and thin! 

Oh, we did get the results from Button Boy’s biopsies Thursday evening.  The eosiniphil count (which back in August was over 235) was ZERO!!  The Flovent has done what we were hoping it would do!  Now, we begin the second phase of the trial, we are halving his dosage.  We will be returning to Cincinnati in roughly 12 weeks to repeat the EGD and biopsies to see how the lower dosage controls the EoE.

 

Super Button Boy!

10 Dec

SEC CHAMPS!!! AND A HEISMAN TYPE OF MAN!!!

4 Dec

Button Boy @ Toomer's Corner

War Eagle Snow!

Girly Girl and her Uncle Dave…

3 Dec

Girly Girl and button boy met Uncle Dave just once….but it made a lastining impression on him.  The next Christmas he sent them some of his favorite book from when he was a child!  The kids loved them!

Now when the anniversary  of his death rolls around we get out some of the books to encourage the kiddos to read them….and they are now getting to where they can!

We miss you Uncle Dave!!!!