Button Boy

26 Jun

Sweet Baby Boy

We have endured many struggles with Button Boy’s eating since he was born.  At five weeks old, he stopped eating.  Just stopped.  Instead of drinking the 2 – 3 oz of formula he had been eating every 4  – 5 hours, he began eating 1/2 to 1 oz….for a developing baby, that is a MAJOR thing!  We immediately got in to see our pediatrician and they scheduled an upper GI.  It was a scary thing to think that my baby was going to have to not eat past a certain time, try to get sleep during that night, and then drink barium out of a bottle to be x-rayed.  Amazingly enough, he made it through the night and gulped down the barium!  The test revealed slight reflux and no other anomalies.

Skip the next few months, lots of stress, and many sleepless nights.  We ended up at Children’s Hospital and seeing a wonderful doctor.  Dr. Saeed admitted us the week before Thanksgiving and began running tests and getting Button Boy fed.  He came a visited us everyday, even taking little boy on walks around the floor and bonding with him.  We treasured our relationship with Dr. Saeed.  He retested the upper GI and performed an endoscopy.  The result was nothing new….we still did not know why Button Boy would not eat.  He was then diagnosed with Failure To Thrive

His G-tube was place on January 13, 2004.

His G-tube was removed June 2007…we thought our eating battles were over.

We returned to Dr. Saeed June 24, 2008.  Button Boy’s eating has declined, his weight has dropped, and he has complained of a “bone in his throat.”  Dr. Saeed has ordered a new upper GI…and will decide after seeing it where we should go and what we should do.  Button Boy is on new medication, and we are praying for God to increase his desire to eat and take away the pain in his throat when he swallows.

I will update Bloggyville after we know more…

 

Beautiful Button Boy

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2 Responses to “Button Boy”

  1. K. Skipper June 30, 2008 at 1:42 pm #

    Such a scary experience for a parent… I admire your strength and pray that God will continue to give you peace and hope. Your little boy is absolutely adorable, and I pray that God will heal him.

  2. Jennifer Gremaux August 15, 2008 at 12:16 pm #

    How is your son doing? I have been thinking and wondering about him. We see several specialists at Children’s too for my son.

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